Short Gut Syndrome Patient, Family & Professional Support Groups

Total Parenteral Nutrition


Frequently Asked Questions about TPN | Children's Hospital of Pittsburgh (CHOP) webpage

What is TPN and How Is It Administered? | Care + Wear article

What is TPN : Living on Intravenous Nutrition | Patient website article

Parenteral Nutrition Resources | ASPEN webpage

Parenteral Nutrition | Cleveland Clinic article

HPN Awareness Week | Oley Foundation webpage

Tools and Tips

Home Parenteral Nutrition Patient Reported Outcome Questionnaire (HPN-PROQ): A tool to facilitate discussion between patient and practitioner | Oley Foundation Website printable document

10 Tips for Adjusting to Your Life With TPN (Total Parenteral Nutrition) | Ameripharma Specialty Care

Liver health: Intestinal Failure Associated Liver Disease (IFALD)

Total parenteral nutrition-induced cholestasis | Children's Wisconsin article

Intravenous Lipid Emulsions and IFALD: Different Products and Different Approaches: Oley Conference Presentation Video

Importance of omega-3s in PN | Fresenius Kabi (manufacturer of Omegaven and SMOF) website with articles, video

Add This as a FavoriteUnderstanding SMOFlipid | Oley Foundation Website article

Intravenous Lipid Emulsions in the Prevention and Treatment of Liver Disease in Intestinal Failure medical journal article

Treatment of Parenteral Nutrition-Associated Liver Disease: The Role of Lipid Emulsions | NIH National Library of Medicine medical journal article

Omegaven | Science Direct a collection of medical journal articles related to omegaven

Changing the Paradigm: Omegaven for the Treatment | Journal of Pediatric Gastroenterology and Nutrition medical journal article

Parenteral Fish Oil Improves Outcomes in Patients with Parenteral Nutrition Associated Liver Injury | NIH National Library of Medicine medical journal article

Intestinal Failure Associated Liver Disease and Choline Deficiency | Oley Foundation Presentation video | slides

Understanding Intestinal Failure-Associated Liver Disease | Children's Hospital Colorado research study description

Drug and Product Shortages

FDA Drug Shortages Database | U.S. Food and Drug Administration website

Managing Patient Needs with Drug Shortages | Oley Conference Presentation video | slides | slides

Parenteral Nutrition Product Shortages | ASPEN webpage

Reporting Medical Device Problems

Help Yourself and Others: Report Problems | Oley Foundation Website article

FDA MedWatch: Report serious drug side effects, product quality problems | FDA website

FDA Medical Device Reporting: report medical device failure, defective batches | FDA website

FDA Manufacturer and User Faulty Device Experience (MAUDE) Database: look up data about reported device failures | FDA website

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