Short Gut Syndrome Patient, Family & Professional Support Groups

Social, Emotional and Quality of Life

Coping with Medical Trauma

The National Child Traumatic Stress Network | Pediatric Medical Trauama Resources website

Trauma & Other Psychological Reponses in IV Nutrition & Tube Feeding: Oley Conference Presentation slides

About Short Gut & Mental Health

Psychosocial Issues Related to Intestinal Failure | Oley Conference Presentation slides

Quality of Life

A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing | Journal of Pediatric Surgery medical journal article

Quality of Life in Intestinal Failure | Oley Conference Presentation video | slides

Navigating Social Situations with a Restricted Diet

To Eat or Not to Eat | Oley Conference Presentation slides

Answering Tough Questions | article

Birthdays and Holidays | article

Dietary Restrictions and Kids | Oley Foundation LifeLine Newsletter article

The Importance of Food in Our Lives: Finding Balance Even When We Cannot Eat | Oley LifeLine Newsletter article

Parents & Caregivers

"You Need Self-Care!": What Can I Do to Cope with Being a Caregiver to a Loved One on HPEN? | Oley Foundation Recorded webinar | slides


Siblings | article

Sibling Support Project website

This website is created by families for families. This site does not provide medical or any other health advice, diagnosis, and/or treatment. This site and its services, including the information above, are for informational purposes only and are not a substitute for professional medical or health advice, examination, diagnosis, and treatment. Always seek the advice of your physician or other health care provider before starting any new treatment, making any changes to existing treatment, or altering in any way yours or your child's current care or diet regimen. Do not delay seeking or disregard medical advice based on the information on this site. Some of the information on this site may be incorrect or out of date. No health information on this site is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure, or prevent any disease without the supervision of a medical professional.