Short Gut Syndrome Parents' Support Group
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Next Support Group Meeting

February 27, 2010
10:30 a.m.

Taylorsville Library
4870 S. 2700 W.
Salt Lake City, UT
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My first group (Intro)

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By: Jill Shadden          (10:00 PM 01/11/2011)
Hey Emily,
I just wanted to let you know if you need any help with the website or newsletters please let me know. I would love to be involved. I remember how lost Leon and I were when Tristyn was diagnosed with Short Gut, we couldnt find any information on her condition or other families like us. So I would love to help as many families as I could! :)

Keep up the good work!
Patrick seems to be getting so big... Ive been following your pics of FB!

Jill & Tristyn
Conflicting Doctors.......... Who do I listen to?
By: Nick's_Mom          (5:52 PM 02/10/2011)
OK, so if you read my introduction, we've been having some problems lately with my son's bacterial overgrowth, leading to dehydration, in return leading to low CO2. I love his GI doc...... but his ideas just don't seam to be working. As a desperate mother, I wrote to many GI pediatric specialists..... a few of whom have called me. One in OH, (we're in CA) wants to see us as soon as possible. I told him of our appointment yesterday and our new "game plan"..... he pretty much disagrees with 90% of it! I can see the points of why he disagrees... they make sense! But while we're working out plane tickets, medical records, insurance....... whose advice do I follow this week?

His regular GI wants us to stop hydration this weekend.... and "see" what happens. ??? I feel like this is setting us up for another relapse. granite, he's on a new probiotic (which the new dr disagrees with)..... uggg.... not really sure what to do. What if I stop, and it lands us in the hospital.... can't make it to OH like that!

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