Short Gut Syndrome Patient, Family & Professional Support Groups

Frequently Asked Questions

There are some topics that come often in our support groups. On this page, we will attempt to give you some research-based answers to these questions. This section of the webpage is in development and will be added to frequently.

Is the prognosis for short bowel syndrome as bad as doctors make it sound?

While previously outcomes were poor, care has evolved so that long-term life expectancy is typical, even for patients with little bowel remaining.
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Will I or my child need an intestinal transplant?

With new advances in care, fewer transplants are performed each year. The goal is to avoid transplant. However, many transplant teams also provide intestinal rehabilitation and a referral may be a step to better care.
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Is there a recommended diet for short bowel syndrome?

There is no one short gut diet. The best diet depends on individual anatomy. There are a few principles that apply to most patients, however.
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This website is created by families for families. This site does not provide medical or any other health advice, diagnosis, and/or treatment. This site and its services, including the information above, are for informational purposes only and are not a substitute for professional medical or health advice, examination, diagnosis, and treatment. Always seek the advice of your physician or other health care provider before starting any new treatment, making any changes to existing treatment, or altering in any way yours or your child's current care or diet regimen. Do not delay seeking or disregard medical advice based on the information on this site. Some of the information on this site may be incorrect or out of date. No health information on this site is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure, or prevent any disease without the supervision of a medical professional.