Short Gut Syndrome Patient, Family & Professional Support Groups

Frequently Asked Questions

There are some topics that come often in our support groups. On this page, we will attempt to give you some research-based answers to these questions. This section of the webpage is in development and will be added to frequently.

Is the prognosis for short bowel syndrome as bad as doctors make it sound?

While previously outcomes were poor, care has evolved so that long-term life expectancy is typical, even for patients with little bowel remaining.
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Will I or my child need an intestinal transplant?

With new advances in care, fewer transplants are performed each year. The goal is to avoid transplant. However, many transplant teams also provide intestinal rehabilitation and a referral may be a step to better care.
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Is there a recommended diet for short bowel syndrome?

There is no one short gut diet. The best diet depends on individual anatomy. There are a few principles that apply to most patients, however.
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