Short Gut Syndrome Parents' Support Group
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Next Support Group Meeting

February 27, 2010
10:30 a.m.

Taylorsville Library
4870 S. 2700 W.
Salt Lake City, UT
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Q & A:
How do you prevent and treat diaper rash caused by Short Gut Syndrome?

“Tips on the diaper thing. (Some may be obvious!)
- don’t let the stool sit in the diaper for any amount of time. The longer the contact with the skin, the more breakdown. Change as soon as you know!
- try to leave the barrier on even when you change the diaper. With watery stools like our kiddos’ you can wipe the stool off the barrier cream and leave it covering the skin pretty well. Sounds gross, but it helps.
- when you do wipe off the barrier cream or do bath etc. make sure the skin is totally dry. Use a blow dryer on cold setting* if you need to.
- don’t use scented wipees! ouch!” - Sarah, mother

“Take your wipes out of the container and rinse them under warm water for several minutes to get all the perfumes and junk out of them then just stick them back in your container and use them as you normally would. We keep a supply of rinsed wipes and a jar of Aquphor near the diaper changing area. These we use on a daily basis. ILEX is used only when we get a severe break down and if we use that as directed, it will look much better in just a day.” - Renee, mother

“Our doctor stressed the importance of protecting the skin before any breakdown happens. We put diaper cream on with every diaper, even when the skin is healthy.” - Emily, mother

“[I] chang[e] the nappy often to prevent any irritation (30+ day at the moment!) and barrier cream, and pawpaw ointment” - Kelanne, mother

“I do very, very frequent diaper changes. Sometimes, 2 or more in an hours time. I am also up 2-3 times during night, to change diapers. When the bottom starts looking slightly pink, I have a RX for “Magic Diaper Cream”. It is a compound of different ingredients and it works wonders!” - a mother

“I wipe his bum with olive oil” - Kit, mother

“I use stomahesive powder plus sensicare on top of it has worked miracles” - Aubrey, mother

“We use domeboro soaks to help with the rash. It is an astringent that is used to pull out the sting from poison ivy” - a mother

“There is one [cream] called ‘butt paste’ or known as ‘happy hiney cream’. Talk to your pharmacist. It is a prescription” - Jessica, mother

*Be cautious when using a blow dryer in the perineal area. There have been cases of burns when the blow dryer was not put on the cold setting.

In our next issue

How do you celebrate Halloween, Thanksgiving, and Christmas when your child has a limited diet?

Have a question?

The Q & A section is a regular feature in our newsletters. It is a place where you can ask questions and find answers about caring for a child with Short Gut.

We’ll ask doctors, nurses, patients, families and other experts for answers to your questions.

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Questions will be posted on our website in the message board at: under the heading “Questions & Answers.”

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The best answers will be published in an upcoming newsletter.

This website is created by parents for parents. This site does not provide medical or any other health advice, diagnosis, and/or treatment. This site and its services, including the information above, are for informational purposes only and are not a substitute for professional medical or health advice, examination, diagnosis, and treatment. Always seek the advice of your physician or other health care provider before starting any new treatment, making any changes to existing treatment, or altering in any way yours or your child's current care or diet regimen. Do not delay seeking or disregard medical advice based on the information on this site. Some of the information on this site may be incorrect or out of date. No health information on this site is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure, or prevent any disease without the supervision of a medical professional.