Q & A:
How do you prevent and treat diaper rash caused by Short Gut Syndrome?
“Tips on the diaper thing. (Some may be obvious!)
- don’t let the stool sit in the diaper for any amount of time. The longer the contact with the skin, the more breakdown. Change as soon as you know!
- try to leave the barrier on even when you change the diaper. With watery stools like our kiddos’ you can wipe the stool off the barrier cream and leave it covering the skin pretty well. Sounds gross, but it helps.
- when you do wipe off the barrier cream or do bath etc. make sure the skin is totally dry. Use a blow dryer on cold setting* if you need to.
- don’t use scented wipees! ouch!” - Sarah, mother
“Take your wipes out of the container and rinse them under warm water for several minutes to get all the perfumes and junk out of them then just stick them back in your container and use them as you normally would. We keep a supply of rinsed wipes and a jar of Aquphor near the diaper changing area. These we use on a daily basis. ILEX is used only when we get a severe break down and if we use that as directed, it will look much better in just a day.” - Renee, mother
“Our doctor stressed the importance of protecting the skin before any breakdown happens. We put diaper cream on with every diaper, even when the skin is healthy.” - Emily, mother
“[I] chang[e] the nappy often to prevent any irritation (30+ day at the moment!) and barrier cream, and pawpaw ointment” - Kelanne, mother
“I do very, very frequent diaper changes. Sometimes, 2 or more in an hours time. I am also up 2-3 times during night, to change diapers. When the bottom starts looking slightly pink, I have a RX for “Magic Diaper Cream”. It is a compound of different ingredients and it works wonders!” - a mother
“I wipe his bum with olive oil” - Kit, mother
“I use stomahesive powder plus sensicare on top of it has worked miracles” - Aubrey, mother
“We use domeboro soaks to help with the rash. It is an astringent that is used to pull out the sting from poison ivy” - a mother
“There is one [cream] called ‘butt paste’ or known as ‘happy hiney cream’. Talk to your pharmacist. It is a prescription” - Jessica, mother
*Be cautious when using a blow dryer in the perineal area. There have been cases of burns when the blow dryer was not put on the cold setting.
In our next issue
How do you celebrate Halloween, Thanksgiving, and Christmas when your child has a limited diet?
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